What’s New?

The events page is regularly updated with training, lectures and conferences, many of which are open to patients and carers aswell as healthcare professionals. Please check the page for updated listings.

The National End of Life Care Programme in collaboration with the University of Nottingham and the National Council for Palliative Care has recently launched the patient information booklet ‘Planning for your Future Care – A Guide’.

You can visit their website and download a copy here.

To order hard copies please print the order form below.

Order form

All regulated providers of Health and Social Care, wether existing providers or new, will have to register their service with the Care Quality Commission (CQC) by October 2010.

Guidance for registration can be found on the CQC website, this gives details on the registration process, you are advised to regularly check their website for updates.

New guidance for doctors, Treatment and care towards the end of life: good practice in decision making, came into effect on 1 July 2010.

This guidance replaces the booklet Withholding and withdrawing life-prolonging treatments (2002). It expands on the guidance in Consent, patients and doctors making decisions together, which sets out the principles on which good clinical decisions should be based, and provides a framework for good practice when providing treatment and care for patients who are reaching the end of their lives.

NICE produce versions of all their guidance for patients, carers and the public.

The 'Understanding NICE guidance' documents are designed to complement, not replace, other sources of patient information that explain in more detail the condition and available treatments. Most of these documents contain contact information for relevant patient or carer organisations that can provide more detailed information and support for specific conditions.

Priorities for Dementia Care within the End of Life Care Strategy’s Quality Markers and Measures for Commissioners

Living well with dementia: A National Dementia Strategy (DH, 2009) includes an objective of improved end of life care for people with dementia. It suggests that to meet that objective ‘local work on end of life care needs to focus on the large numbers of people who will die with dementia’ and makes reference to the End of Life Care Strategy: delivering high quality care for adults at the end of life (DH, 2008). This guide maps out some of the priorities for achieving high quality care for adults with dementia at the end of life.

The National End of Life Care Intelligence Network (NEoLCIN) aims to improve the collection and analysis of information related to the quality, volume and costs of care provided by the NHS, social services and the third sector, to adults approaching the end of life. This intelligence will help drive improvements in the quality and productivity of services. The Network is supported by the National End of Life Care Programme.