St Gemma's Hospice
Poskytování přístupu k informacím v oblasti paliativní péče a vzdělání pro pacienty, pečovatelů a profesionálové na podporu po skončení životnosti možností
A nurse in a ward

Zdroje

The resources on these pages are intended for staff working in partner organisations; Leeds Community Healthcare NHS Trust, Leeds fakultních nemocnic NHS Trust, St Gemma’s and Sue Ryder Wheatfield’s Hospices, Leeds Adult Social Services and Yorkshire Ambulance Service NHS Trust.

Whilst we endeavour to keep such information as up-to-date as possible, Vyrábíme žádný nárok jako její celkovou správnost a úplnost. Informace je povinen změnit, and it is the individual’s responsiblility to ensure that the guidelines and policies they access are up to date and appropriate for their area of practice and their employing organisation.

Referral forms

These forms can only be accessed from a NHS linked computer. For each link you may need to scroll down the web page to access the form.

Contact information

Some of these links can only be accessed from a NHS linked computer.

Informace pro pečovatele – local services

This service directory lists services available to people living in Leeds including contact details for:

  • Specialist and palliative care services
  • Respite services
  • Non-cancer organisations
  • Podpora v období zármutku

Clinical guidelines and policies

Regional DNACPR form

  • This form is intended to improve the quality of DNACPR decision-making and to record and communicate DNACPR decisions.
  • It is specifically for those patients who are approaching the last days of life, where cardio-pulmonary resuscitation would be futile or not a viable option. It makes it very clear that patients should still receive all other appropriate care and treatment. Crucially it also takes into consideration advice of the Mental Capacity Act and gives a legitimate framework in which to discuss all aspects of end of life care.
  • The form which is transferable between a patient’s home, hospital, care home, hospice or any care setting is intended to replace the various forms currently used across health and social care organisations.

NHS Leeds Community Healthcare guidelines and policies

This web page includes links to:

Clinical:

  • Making decisions about resuscitation
  • Verification of expected death of an ddult by a registered nurse (General)

Guidelines > Clinical:

  • Clinical Guideline for the Safe Use of the McKinley T34 Syringe Driver (Medical Devices)
  • Administration of Subcutaneous Fluids (Hypodermoclysis) (General Guidelines)

YCN pravidla včetně,en ‘A Guide to Symptom Management in Palliative Care’

  • In difficult situations consider seeking advice from the local specialist palliative care team.
  • Zřeknutí se: It is intended that theses guidelines are to be used by qualified medical and other healthcare professionals as an information resource. They should be used in the clinical context of each individual patient’s needs. The palliative care group takes no responsibility for any consequences of any actions taken as a result of using these guidelines.

Treatment and care towards the end of life: good practice in decision making

  • This new guidance for doctors came into effect on 1 Červenec 2010. It replaces the booklet Withholding and withdrawing life-prolonging treatments (2002). It expands on the guidance in Consent, patients and doctors making decisions together, which sets out the principles on which good clinical decisions should be based, and provides a framework for good practice when providing treatment and care for patients who are reaching the end of their lives.

Guidelines for communicating prognosis and end-of-life issues

  • Article from The Medical Journal of Australia
    Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers
    MJA 2007; 186 (12 Suppl): S77-S108

Guidance for staff responsible for care after death (last offices)

  • Developed by the National End of Life Care Programme and National Nurse Consultant Group (Palliative Care), this guidance:
  • sets out key principles
  • is intended as a guide for training, as well as for informing the development of organisational protocols for this area of care
  • aims to provide a consistent view that accommodates England’s diverse religious and multi-cultural beliefs.

Capacity, care planning and advance care planning in life limiting illness: A Guide for Health and Social Care Staff

  • This guide is an updated version of Advance Care Planning: a guide for health and social care staff. It covers:
  • the importance of assessing a person’s capacity to make particular decisions about their care and treatment and of acting in the best interests of those who are assessed as lacking capacity to make these decisions.
  • the differences and relationship between care planning and advance care planning.

End of Life Care Patient Charter

  • A charter for the care of people who are nearing the end of their life
  • As part of the implementation project for the UK wide Royal College of General Practitioners End of Life Care (EOLC) Strategy adopted by the RCGP in 2009, a Patient Charter ‘for the care of people nearing the end of their life` was launched on 1 June 2011.

Clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients

  • The Centre for Palliative Care in Australia, along with partners/researchers from other institutions, has developed Clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients.
  • You can download the guidelines from the Centre for Palliative Care website, along with the methodology and the literature review that supports the guidelines.

Leeds závislosti na opiátech Guide Konverze pro dospělé paliativní péče o pacienty 2016

  • Tato místní pokyn je určen pro použití zdravotnickými pracovníky pro kontrolu konverze dávky a spočítat, že pacienti dostávají správný PRN ( “podle potřeby”) dávky léků na opiátech. Pokud by se objevily nesrovnalosti nebo dotazy během tohoto procesu kontroly předepisující lékař musí být kontaktován.
  • Je-li pokyn používán jako nástroj předepisujícího, je nutné si přečíst poznámky na pravé straně dokumentu a vyhledat odborného paliativní péče radu podle potřeby.
  • Zřeknutí se: Předpokládá se, že tento pokyn má být použit kvalifikovaným zdravotnickým a ostatních zdravotnických profesí jako zdroj informací. They should be used in the clinical context of each individual patient’s needs. The Leeds Palliative Care MCN takes no responsibility for any consequences of any actions taken as a result of using these guidelines.

Service improvement

Leeds palliative care ambulance operational policy

The Leeds palliative care ambulance operational policy (version 10, November 2013) includes information on aims of service, guidelines for referral, out of hours, staffing and training. It is reviewed annually and updated by the Palliative Care Transport Working Group.

Educational resources

Some of these links can only be accessed from a NHS linked computer. You may also need to scroll down the web page to access the document required.

E-learning for Healthcare – e-ELCA End of life care for all

There are over 150 highly interactive sessions of e-learning within e-ELCA. These are arranged in 4 core modules:

  • Advance care planning
  • Assessment
  • Communications skills
  • Symptom management, comfort and wellbeing

as well as three additional modules (social care, bereavement and spirituality) a jeden integraci učení modul, který pomáhá upevňovat a aplikovat znalosti v různých situacích.

Leeds palliative care communication skills strategy

Level 1 – palliative care communication skills learning pack

  • This communication skills learning package has been adapted for use with health and social care staff who provide palliative and end of life care. It is by no means exhaustive, but is intended to give the learner an overview of communication skills required at level 1 as outlined in the Palliative Care Communication Skills Strategy.
    Please note these resources are currently under review.
  • Level 1 communication skills learning pack (pdf)
  • Level 1 learning outcomes and competency elements

Level 2 – palliative care communication skills learning pack

  • This communication skills learning package will consider what makes communication effective and has been designed for use with health and social care staff who provide palliative and end of life care. It is by no means exhaustive, but is intended to give the learner an overview of communication skills required at level 2 as outlined in the palliative care communication skills strategy.
  • Please note these resources are currently under review.
  • Level 2 – communication skills learning pack (pdf)
  • Level 2 – learning outcomes and competency elements

Pre-course questionnaire

This questionnaire has been developed to:

  • Evaluate the marketing and administration of palliative care courses.
  • Assess prior knowledge, skills and confidence.
  • Ensure education, training and development meets the needs of KSF outlines for individuals providing palliative care.

Day evaluation form

This evaluation form is to be used at the training event and will assess the course in terms of:

  • Level and target audience
  • Supporting materials
  • Learning outcomes and learning needs
  • Content
  • Suitability of venue

This questionnaire can be printed and used for all palliative care courses provided by Leeds stakeholder organisations.

Post-course questionnaire

This questionnaire is sent out 12 weeks after any palliative care education or training event. It has been developed to:

  • Assess any improvement in knowledge, skills and confidence as a result of attending the education or training event.
  • Evaluate the impact palliative care education, training and development has had on practice.
  • Evaluate the impact palliative care education, training and development has had on patient and carer experience.
  • Identify any gaps in education or training and assist with the planning of future events.
  • Establish the demand for updates and refreshers and their frequency.
  • Ensure education, training and development meets the needs of KSF outlines for individuals providing palliative care.

A copy of the completed evaluation can be used it is evidence for your professional portfolio and appraisals / KSF development reviews.

Staying effective in a changing world – tools of the trade for facilitators in end of life care

More than 90 End of Life Care Facilitators attended the second Facilitators’ Network conference in Leeds on 1 March 2011.

The focus of event was to equip facilitators with further practical tools to enable them to continue driving forwards improvements in care.

This report details the the range of audit tools, education programmes and innovative community projects that were shared during the day.

Change pain

Change Pain is a comprehensive educational programme designed to provide guidance and shared knowledge to help healthcare professionals advance the management of severe chronic pain. (This resource is at the end of the web page provided via the link above)

e-learning modules on Macmillan Cancer Support’s Learn Zone

Macmillan Cancer Support have produced e-learning modules on Palliative care during the “out of hours” period through BMJ Learning. They have also produced a further selection of free of charge e-learning modules based on the coordination of care in the out of hours period.

The modules cover practical guidance and information on a number of key areas of out-of-hours and palliative care and allow users to “dip in and out” as they choose with each module taking between 30 a 60 minutes to complete. There is a self assessment at the end of each module which you can complete. Following completion of the self assessment, they will provide a certificate that you can print off to support your annual appraisal and Continuing Professional Development (CPD).

Training needs analysis (TNA) tools

The National End of Life Care Programme have produced end of life care training needs analysis (TNA) questionnaires, along with a communication skills self-assessment questionnaire.

These tools are relevant for all staff involved in, or planning to be involved in, end of life care. Pomáhají identifikovat a řešit případné mezery v dovednostech pracovní síly, znalosti a postoje a mohou být použity k průzkumu všechny pracovníky ve zdravotnictví a sociální péče - bez ohledu na disciplínu, školní známka, role, Odpovědnost nebo nastavení.

Péče o pacienty s pokročilým onemocněním ledvin na konci života - Deset tipů

'10 Nejlepší tipy 'je vodítkem produkovaný NHS Kidney Care pomoci lékaři a odborníci primární péče poskytovat vysoce kvalitní koncem životnosti péče pacientům s pokročilým onemocněním ledvin.

Špičky pokrývají širokou škálu témat, od toho, jak k identifikaci pacientů, kteří mohou být blíží ke konci svého života a práce s multidisciplinárního týmu zkontrolovat, jaké plány jsou již zavedeny, do vedení na příznaky a léky pro pacienty s pokročilým onemocněním ledvin.

Other

Marie Curie filmu příručky pro pečovatele

  • Film příručky pro pečovatele
    Marie Curie Cancer Care produkoval sérii filmů, které vám pomohou pečovat o někoho, kdo je čím dál slabší, protože jejich nemoc postupuje. Tyto filmy se zaměřují především na pomoc osobě se svou osobní péči, jim pomáhá přesunout, a podporovat jejich každodenního života.
  • Pomoci na konci životnosti
    Marie Curie Cancer Care produkovala filmy, které mají za cíl podpořit vás pečovat o někoho, kdo jede na konci své životnosti a očekává se, že zemře během několika dní. Těžištěm péče v tomto okamžiku je o tom, že osoba pohodlné a dělá jen tolik, kolik chtějí dělat, nebo jsou schopny

Péče seznamu zdrojů

    • This is a list of resources available for care homes to find information which will help with the care of their residents, it is not exhaustive.
    • The ‘What’s new’ page of this website should also be checked regularly.
    • If you know of any other information which could be of use please email us.

Checklist for end of life care for nursing homes

Help the Hospices – Adding life to days: a short film

      • Help the Hospices have produced this short film.
      • Did you know that most hospice care takes place in people’s own homes? Were you aware that hospices care for friends and families too? There may be many things about hospice care that surprise you – this short film gives an insight in what hospices really do.

Planning for your future care – a guide

      • Tato příručka je určena pro členy veřejnosti a vysvětluje, plánování předem péče. Nastiňuje různé možnosti jsou k dispozici pro lidi při plánování jejich konci životnosti péče.

National End of Life Care Programme

        • Národní End Program LIFE péči o pracuje s zdravotnických a sociálních služeb ve všech odvětvích v Anglii s cílem zlepšit konci životnosti péče pro dospělé zavedením ministerstvem zdravotnictví je po skončení životnosti strategie péče.
        • Jejich webové stránky jsou navrženy tak, aby podporovaly zdravotní a sociální péče práci zaměstnanců, v jakémkoli postavení, s lidmi blíží ke konci života.

Národní End of Life péče Intelligence Network (NEoLCIN)

        • NEoLCIN si klade za cíl zlepšit shromažďování a analýzu informací týkajících se kvality, objem a náklady péče poskytovaná v rámci NHS, sociálních služeb a třetí sektor, pro dospělé blíží ke konci životnosti. This intelligence will help drive improvements in the quality and productivity of services. The Network is supported by the National End of Life Care Programme.

International Observatory end of life care report

        • This report reviews the CHESS programme and CAPCCS team.

Macmillan Cancer support primary care cancer lead resources

        • Macmillan have produced a number of documents to assist PCCLs in influencing their local health economy and shape the future of the PCCL role.

Priorities for dementia care within the end of life care strategy’s quality markers and measures for commissioners

        • Living well with dementia: A National Dementia Strategy (DH, 2009) includes an objective of improved end of life care for people with dementia. It suggests that to meet that objective ‘local work on end of life care needs to focus on the large numbers of people who will die with dementia’ and makes reference to the End of Life Care Strategy: delivering high quality care for adults at the end of life (DH, 2008). This guide maps out some of the priorities for achieving high quality care for adults with dementia at the end of life.

Out of the shadows: end of life care for people with dementia

        • This report is available to subscribers of the NCPC website.
        • This report has been published by the National Council for Palliative Care (NCPC) with Marie Curie Cancer Care, NHS Haringey, Barnet, Enfield and Haringey Mental Health NHS Trust, Haringey Council and For Dementia in October 2009.
        • Tato zpráva je založena na: Diskuse na setkání s odborníky zdravotní péče, kteří se starali pro širokou škálu lidí s demencí; rozhovory s opatrovníky lidí s demencí; a analýza historií zdravotní péče obdržené prostřednictvím malého vzorku lidí s demencí, který zemřel v Haringey od května 2008 a březen 2009.

NICE pokyny pro pacienty a veřejnost

        • NICE verze vyrábět ze všech jejich vedením pro pacienty, pečovatelé a veřejnost.
        • Dále jen "Pochopení NICE navádění’ Dokumenty jsou určeny pro doplnění, nenahradí, další zdroje informací o pacientech, které vysvětlují podrobněji stav a jsou k dispozici procedury. Most of these documents contain contact information for relevant patient or carer organisations that can provide more detailed information and support for specific conditions.

Easy-read accessible books about cancer

        • CHANGE has to worked in partnership with Macmillan Cancer Support to publishing accessible information about cancer.
        • They have produced six easy-read accessible books about cancer written for people with learning disabilities and their carers.
        • They are available to order free from Macmillan Cancer Support.

Tailor made: “Personalisation must work for those who need it most…”

      • Through in-depth interviews and focus groups with care users and staff, tato brožura zkoumá, jak může být člověk zaměřený služby dosáhnout pro ty, kteří to nejvíce potřebují - ty s mnohočetnými a komplexními potřebami, a v prostředí, kde personalizace je nejtěžší, jako jsou pečovatelské domy a paliativní péče center,en.

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    Tato webová stránka byla vyvinuta ve spolupráci NHS a zdravotní a sociální péče organizací v Leedsu po Marie Curie Přináší Volba programu.
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